Area of Science:

• Neurology
• Communication Disorders
• Qualitative Research Methodology

Context:

• Aphasia, a communication disorder resulting from stroke, presents challenges in acute care settings.
• Researching caregiver-patient relationships in neurovascular departments requires sensitive methodologies.

Purpose:

• To propose and evaluate a participatory research methodology.
• To integrate the lived experiences of nurses and care assistants into research.

Summary:

• A qualitative, observational study employed grounded theory.
• Participatory analysis involved nurses and care assistants in interpreting findings.
• Twenty-one care situations were observed, with eight analyzed in depth.

Impact:

• Facilitated the integration of frontline caregiver experiences into research.
• Demonstrated the value of participatory approaches in complex clinical environments.
• Provided insights into caregiver-patient dynamics in acute stroke care.