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Embodied decisions unfolding over time: a meta-ethnography systematic review of people with cancer's reasons for
Jessica Young1, Antonia Lyons2, Richard Egan3
1Victoria University of Wellington, Wellington, New Zealand. Jessica.young@vuw.ac.nz.
BMC Palliative Care
|February 18, 2024
Summary
Patients often decline end-of-life care due to embodied decisions influenced by communication, prognosis uncertainty, and evolving situations. Understanding these dynamic factors is key to improving care access for cancer patients.
Area of Science:
- Oncology
- Palliative Care
- Health Psychology
Background:
- Barriers to hospice and palliative care access are well-documented.
- Reasons for declining end-of-life care referrals remain under-researched.
- Focus on patients with cancer in the final months of life who refused end-of-life care services.
Conclusions:
- End-of-life care decisions are complex, dynamic, and influenced by embodied experiences of cancer.
- Time perception and the 'right time' for care are central to decision-making.
- Further exploration of physical, mental, social, and spiritual domains is needed to improve access, acknowledging not all patients desire end-of-life care.
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