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Updated: Jul 2, 2025
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De novo Identification of Actively Translated Open Reading Frames with Ribosome Profiling Data
Published on: February 18, 2022
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Online Resources for Robin Sequence; an Analysis of Readability
R Browne1,2, C M Hurley1,2, S Carr1,2
1Department of Plastic Surgery, Children's Health Ireland, Crumlin, Ireland.
Summary
Online information about Robin Sequence (RS) is too difficult for parents to understand. Readability levels are significantly higher than the recommended sixth grade, indicating a need for simpler, parent-friendly resources.
Area of Science:
- Medical communication
- Health literacy
- Pediatric health information
Background:
- Parent-directed online information is a primary source for understanding medical conditions.
- Robin Sequence (RS) is a complex congenital condition requiring clear patient information.
- The American Medical Association (AMA) recommends a sixth-grade reading level for patient materials.
Purpose of the Study:
- To assess the readability of online parent-directed information on Robin Sequence (RS).
- To compare the readability of RS online resources against the AMA-recommended sixth-grade level.
Main Methods:
- A Google search for "Pierre Robin Sequence information" identified the top ten websites.
- Six standard readability formulas (ARI, Coleman Liau, Gunning Fog, SMOG, Flesch Kincaid, Flesch Reading Ease) were applied.
- Author-translated texts were created to target a sixth-grade reading level for comparison.
Main Results:
- The average readability of the top ten websites was at a 12.1 grade level (ages 17-18).
- Flesch Reading Ease score indicated a college-level reading demand (45.8).
- Author-translated materials achieved a mean grade level of 6.3-6.5, meeting the target.
Conclusions:
- Current online parent information for Robin Sequence exceeds the recommended sixth-grade reading level.
- Simplified, more accessible resources for RS are feasible.
- Involving patients and the public in co-producing educational materials is recommended.
Keywords:
Robin sequencecleft palateevidence-based practiceparental perceptionsocial supportteam careMore Related Videos
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