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Using Continuous Data Tracking Technology to Study Exercise Adherence in Pulmonary Rehabilitation

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Remote pulmonary rehabilitation for interstitial lung disease: developing the model using experience-based codesign.

Lisa Jane Brighton^1,2, Nannette Spain³, Jose Gonzalez-Nieto³

¹Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation, King's College London, London, UK.

BMJ Open Respiratory Research

|February 20, 2024

Summary

This summary is machine-generated.

A new remote pulmonary rehabilitation (PR) program for interstitial lung disease (ILD) was codesigned with patients, families, and healthcare professionals. This collaborative approach ensures the program meets the specific needs of people with ILD for improved accessibility.

Keywords:

Interstitial Fibrosis Pulmonary Rehabilitation

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Area of Science:

Pulmonary Medicine
Rehabilitation Science
Patient-Centered Care

Background:

Remote pulmonary rehabilitation (PR) can enhance access for patients with chronic respiratory diseases.
Existing PR studies primarily focus on COPD, lacking codesign for other conditions like interstitial lung disease (ILD).
There's a need for PR interventions developed with patient, carer, and healthcare professional input.

Purpose of the Study:

To codesign a remote PR program for individuals with ILD.
To utilize experience-based codesign (EBCD) involving patients, carers, and healthcare professionals.
To prepare a codesigned PR program for future testing.

Main Methods:

Employed EBCD, including interviews, stakeholder workshops, and codesign meetings.
Developed a 20-minute film from videorecorded interviews for feedback.
Utilized stakeholder feedback events and final codesign workshops to finalize the program.

Main Results:

Interviews included 10 people with ILD, 4 carers, and 7 healthcare professionals.
Codesign workshops involved 14 service users and 11 healthcare professionals.
The final program is a group-based, supervised videoconference delivery, tailored for ILD safety, peer support, and education, including palliative care signposting.

Conclusions:

A remote PR program for ILD was successfully codesigned by patients, carers, and multidisciplinary teams.
Future research should assess the feasibility and acceptability of this novel intervention.