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Updated: Jul 2, 2025
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Published on: December 7, 2018
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Social media shaping autism perception and identity
Ingjerd Skafle1,2, Elia Gabarron1,3, Anders Nordahl-Hansen1
1Østfold University College, Norway.
Autism : the International Journal of Research and Practice
|February 23, 2024
Summary
Social media offers valuable autism information for autistic adults, providing insights into identity and community. However, official health pages are often insufficient, necessitating a more inclusive approach to content creation.
Area of Science:
- Neurodevelopmental Disorders
- Digital Health
- Social Sciences
Background:
- Limited research exists on how autistic individuals access autism information via social media.
- Autistic adults often find official health resources insufficient for their needs.
Purpose of the Study:
- To explore autistic adults' experiences using social media for autism-related information.
- To understand the perceived benefits and drawbacks of social media for autism information seeking.
Main Methods:
- Qualitative study involving interviews with 12 autistic adults (aged 18-49).
- Exploration of social media use for general autism information, identity, and community.
Main Results:
- Participants found social media valuable for autism information despite perceived unreliability.
- Positive content related to autistic identity and supportive online communities were identified.
- Negative experiences included aggressive discussions and feelings of alienation in some online spaces.
Conclusions:
- Social media can supplement official autism information, offering identity affirmation and community support.
- Official autism resources should incorporate autistic community input to improve content relevance and sufficiency.
- There is a need to foster more inclusive and supportive online environments for autistic individuals.
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