Rehabilitation and functional outcomes for thoraco-omphalo-ischiopagus conjoined twins five years after separation: A

Dana L Sheng1, Shawna Arsenault2, Michael Wadekamper2

  • 1Department of Sports Medicine, Dignity Health, Carmichael, CA, USA.

Insights

This case study details the separation and rehabilitation of conjoined twins with complex limb deficiencies. Comprehensive multidisciplinary care enabled them to achieve independent mobility with prostheses and walkers.

Area of Science:

  • Pediatric Rehabilitation
  • Congenital Anomalies
  • Orthotics and Prosthetics

Background:

  • Conjoined twins are a rare congenital condition requiring specialized medical and rehabilitative care.
  • This report focuses on thoraco-omphalo-ischiopagus tripus conjoined twins, a specific and complex presentation.

Observation:

  • Following surgical separation at age two, the twins underwent intensive inpatient and outpatient rehabilitation.
  • Customized seating (ZipZac) facilitated early independent mobility.
  • The twins utilized posterior walkers and specialized prostheses, including hemipelvectomy components with thoracolumbosacral orthosis (TSL-O) and articulated ankle-foot orthoses (AFOs).

Findings:

  • The rehabilitation program successfully improved sitting balance and gross motor skills.
  • Within six months, the twins achieved ambulation using walkers and prostheses.
  • Prosthetic management involved custom TSL-O components and manual-locking hip joints for sitting functionality.

Implications:

  • Lifelong, comprehensive multidisciplinary care is essential for individuals with complex congenital limb deficiencies.
  • Anatomic variations necessitate individualized treatment plans, addressing limb deficiencies, orthopedic abnormalities, and potential organ comorbidities.
  • This case highlights the successful integration of orthotics and prosthetics in achieving functional independence for severely affected individuals.

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