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Rehabilitation and functional outcomes for thoraco-omphalo-ischiopagus conjoined twins five years after separation: A
Dana L Sheng1, Shawna Arsenault2, Michael Wadekamper2
1Department of Sports Medicine, Dignity Health, Carmichael, CA, USA.
Insights
This case study details the separation and rehabilitation of conjoined twins with complex limb deficiencies. Comprehensive multidisciplinary care enabled them to achieve independent mobility with prostheses and walkers.
Area of Science:
- Pediatric Rehabilitation
- Congenital Anomalies
- Orthotics and Prosthetics
Background:
- Conjoined twins are a rare congenital condition requiring specialized medical and rehabilitative care.
- This report focuses on thoraco-omphalo-ischiopagus tripus conjoined twins, a specific and complex presentation.
Observation:
- Following surgical separation at age two, the twins underwent intensive inpatient and outpatient rehabilitation.
- Customized seating (ZipZac) facilitated early independent mobility.
- The twins utilized posterior walkers and specialized prostheses, including hemipelvectomy components with thoracolumbosacral orthosis (TSL-O) and articulated ankle-foot orthoses (AFOs).
Findings:
- The rehabilitation program successfully improved sitting balance and gross motor skills.
- Within six months, the twins achieved ambulation using walkers and prostheses.
- Prosthetic management involved custom TSL-O components and manual-locking hip joints for sitting functionality.
Implications:
- Lifelong, comprehensive multidisciplinary care is essential for individuals with complex congenital limb deficiencies.
- Anatomic variations necessitate individualized treatment plans, addressing limb deficiencies, orthopedic abnormalities, and potential organ comorbidities.
- This case highlights the successful integration of orthotics and prosthetics in achieving functional independence for severely affected individuals.
Abstract:
Conjoined twins are identical twins joined in utero and are a rare phenomenon. This report discusses a case of female thoraco-omphalo-ischiopagus tripus conjoined twins. The twins were separated at age two, and once medically stable, spent one month in inpatient rehabilitation to improve their sitting balance and gross motor skills. This was followed by outpatient physical therapy. The twins initially had customized ZipZac seats, which they were able to wheel independently. After six months of therapy, the girls began walking with posterior walkers and prostheses. The hemipelvectomy prosthesis included a customized thoracolumbosacral orthosis component and was directly attached to a non-articulated pylon. A manual-locking hip joint was added to accommodate sitting. An articulated ankle-foot orthosis was used for the intact leg. Care of formerly conjoined twins requires comprehensive care from a multidisciplinary team involving, but not limited to, a physiatrist, orthopaedic surgeon, physical therapist, and orthotist/prosthetist. Complex congenital limb deficiencies are often a major undertaking for the rehabilitation team as continuous treatment and management are needed throughout the patient's lifetime due to growth, development, and evolving physical demands. Anatomic variations must be examined on a case-by-case basis but often include limb deficiencies, orthopedic abnormalities, and organ comorbidities.
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