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User-Centered Development of HEARTPrep, a Digital Health Psychosocial Intervention for Prenatally Diagnosed

Erica Sood1,2,3, Kimberly S Canter2,3, Steven Battisti4

  • 1Nemours Cardiac Center, Nemours Children's Health, Wilmington, DE, USA.

Journal of Patient Experience
|February 28, 2024
PubMed

User-centered models for the development of digital health interventions are not consistently applied in healthcare settings. This study used a five-phase, user-centered approach to develop HEARTPrep©, a psychosocial intervention delivered via mobile app and telehealth to mothers expecting a baby with congenital heart disease (CHD) to promote maternal, family, and child well-being. Phases of intervention development were: (I) establishing partnerships; (II) creating content; (III) developing prototype and testable intervention; (IV) conducting think-aloud testing; and (V) completing beta testing. Partnerships with parents, clinicians, and design/technology experts were integral throughout the development of HEARTPrep©. Parents of children with CHD also served as participants in Phases II-V, contributing to the creation of content and providing feedback to inform the iterative refinement of HEARTPrep©. These five phases produced a refined digital health intervention with promising feasibility, usability, and acceptability results. This user-centered approach can be used to develop digital health interventions targeting various health outcomes.

Keywords:
behavioral healthcardiovascular diseasecaregivingmobile experience applicationspediatricstechnologytelehealth

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