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Effects of Implementing a Standardized Surveillance Program on Cardiac Neurodevelopmental Program Referral

Heather Hennrick1, Elizabeth Miller2, Wyman W Lai2,3

  • 1Department of Psychology and Neuropsychology, Children's Hospital of Orange County, 1120 West La Veta Avenue, Suite 470, Orange, CA, 92868, USA.

Pediatric Cardiology
|February 28, 2024
PubMed
Summary

Implementing a standardized cardiac neurodevelopmental surveillance program increased referrals by 66.7% and improved referral completion rates. This approach also reduced disparities for Hispanic/Latino patients, enhancing care access.

Keywords:
Cardiac Neurodevelopmental Outcome CollaborativeCardiac neurodevelopmentCongenital heart diseaseSurveillance

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Area of Science:

  • Pediatric Cardiology
  • Neurodevelopmental Disorders
  • Healthcare Quality Improvement

Background:

  • Variability in cardiac neurodevelopmental programs stems from inconsistent surveillance, impacting referral volumes and completion.
  • Barriers to referral completion include high no-show rates, inadequate patient education, and accessibility issues for underrepresented groups.

Purpose of the Study:

  • To describe the implementation of a standardized surveillance program in a cardiac neurodevelopmental program.
  • To investigate the program's impact on referral volume and completion rates over two fiscal years.

Main Methods:

  • A standardized surveillance program was implemented, incorporating a neurodevelopmental risk assessment checklist, family education, and streamlined referral procedures.
  • Referral data from fiscal years 2021 and 2022 were analyzed, categorizing referrals as complete or incomplete.
  • Statistical analyses included two-sample Z tests of proportions and chi-square tests of independence to compare referral completion rates and demographic associations.

Main Results:

  • Implementation led to a 66.7% increase in referral volume.
  • Significant reductions were observed in overall incomplete referrals (p < 0.05) and physician-related incomplete referrals (p < 0.01).
  • A significant association was found between referral completion and race/ethnicity (p < 0.01), with a higher completion rate for Hispanic/Latino patients.

Conclusions:

  • The standardized surveillance program successfully improved referral volume and completion rates.
  • Findings support physician-focused surveillance methods and enhanced accessibility to reduce disparities for marginalized populations.
  • The program demonstrated effectiveness in improving access and quality of care for at-risk groups.