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Parents' experiences of sham feeding their child with esophageal atresia at home while awaiting reconstructive

AnnaMaria Tollne1, Tuva Nilsson1, Jan F Svensson1,2

  • 1Pediatric Surgery Unit, Department of Pediatric Surgery, Karolinska University Hospital, Astrid Lindgren Children's Hospital, 171 76, Stockholm, Sweden.

Pediatric Surgery International
|February 29, 2024
PubMed

Insights

Parents undergoing sham feeding for infants with esophageal atresia found it reinforced their child's abilities and their own parental confidence. The healthcare system played a dual role, offering support or hindrance during this waiting period.

Area of Science:

  • Pediatric Surgery
  • Qualitative Health Research
  • Parental Experience

Background:

  • Esophageal atresia (EA) is a congenital condition requiring surgical repair.
  • Delayed reconstruction necessitates supportive home care strategies for infants.
  • Sham feeding is a technique used in managing infants with EA awaiting surgery.

Purpose of the Study:

  • To explore the lived experiences of parents sham feeding their infant with EA at home.
  • To understand parental perceptions of sham feeding's impact on the child and family.
  • To identify challenges and supports within the healthcare system during the pre-operative period.

Main Methods:

  • Qualitative content analysis of semi-structured interviews.
  • In-depth exploration of six families' experiences with infant EA.
  • Focus on parental perspectives during the waiting period for reconstructive surgery.

Main Results:

  • Sham feeding was perceived by parents as reinforcing their infant's healthy abilities.
  • Parents reported increased faith in their caregiving capacity and their child's resilience.
  • The healthcare system's role was described as variable, acting as both a support and a barrier.

Conclusions:

  • Sham feeding at home offers positive experiences for infants with EA and their parents.
  • Parental confidence and perceived infant strengths are key benefits.
  • Navigating the healthcare system is crucial for a smoother transition to a more normal home life.
Abstract

Keywords:
Delayed reconstructive surgeryEsophageal atresiaHomecareParents’ experienceSham feed

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