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Routinely collected burn clinical data in Canada: Determining the knowledge gap.

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Canada lacks a national burn registry, relying on limited data. This study highlights the significant knowledge gap and supports developing a national system for better burn injury surveillance.

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Area of Science:

  • Public Health
  • Epidemiology
  • Trauma Care

Background:

  • Canada lacks a national burn registry, unlike other developed nations.
  • Current surveillance relies on fragmented single-centre secondary datasets and administrative databases.
  • This approach limits comprehensive monitoring of burn injuries and care.

Purpose of the Study:

  • To identify the knowledge gap resulting from Canada's absence of a dedicated burn registry.
  • To assess the existing burn literature derived from secondary data sources in Canada.

Main Methods:

  • A comprehensive scoping review of Canadian burn literature from secondary datasets was conducted.
  • Studies of all designs were included, excluding case reports and case series.
  • A thematic framework was developed based on data from countries with national burn registries.

Main Results:

  • Eighty-eight studies were included; only 12 used national datasets, and 18 used provincial databases.
  • The majority of studies (58%) utilized non-collaborative, single-centre secondary datasets.
  • Research was concentrated in specific provinces, with many studies outdated and some regions lacking published data.

Conclusions:

  • Significant gaps exist in Canadian burn injury and care surveillance due to the lack of a national registry.
  • Current data sources are fragmented and underutilized, hindering comprehensive research.
  • Development of a nationwide burn registry is crucial to address these knowledge gaps and improve burn care surveillance in Canada.