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Disparities Between Teleretinal Imaging Findings and Patient-Reported Diabetic Retinopathy Status and Follow-up Eye
Paolo S Silva1,2, Jerry D Cavallerano1,2, Jennifer K Sun1,2
1Beetham Eye Institute, Joslin Diabetes Center, Boston, MA.
Many patients with diabetes are unaware of their diabetic retinopathy (DR) and have eye exam follow-up that doesn't match their DR severity. Patient self-reports are unreliable for assessing DR status.
Area of Science:
- Ophthalmology
- Endocrinology
- Public Health
Background:
- Diabetic retinopathy (DR) is a leading cause of vision loss in diabetic patients.
- Patient awareness of DR and the concordance of eye examination follow-up with DR severity are critical for effective management.
- Current methods for assessing awareness and concordance may be insufficient.
Purpose of the Study:
- To evaluate patient self-reported awareness of diabetic retinopathy (DR).
- To assess the concordance between eye examination follow-up and actual DR findings from retinal images.
- To identify factors influencing awareness and concordance, including the type of eye care provider.
Main Methods:
- A prospective observational study involving 26,876 patients with diabetes over 10 years.
- Retinal imaging was performed during endocrinology visits.
- Patient awareness and follow-up concordance were assessed via questionnaires and comparison with imaging results.
Main Results:
- Over 50% of patients with vision-threatening DR (vtDR) were unaware of their condition.
- Concordance between follow-up and DR severity varied significantly by provider type, being lowest with optometrists.
- Discrepancies in awareness and follow-up were common across all DR severity levels.
Conclusions:
- Patient self-reported awareness of DR is often inaccurate and should not be solely relied upon.
- Significant gaps exist in the concordance of eye care follow-up with DR status.
- Healthcare and educational models need modification to improve patient understanding and provider communication regarding DR.
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