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Patient experience of bladder cancer: A data linkage study
Snehadhar Shah1, Jonathan Ince1, Roger Kockelbergh1,2
1University Hospitals of Leicester NHS Trust Leicester UK.
BJUI Compass
|March 14, 2024
Summary
Bladder cancer patients with long-term conditions report worse experiences across all care aspects. Cystectomy impacts body image and daily activities more than radical radiotherapy, highlighting areas for improved patient support.
Area of Science:
- Oncology
- Patient Experience Research
- Health Services Research
Background:
- Bladder cancer is a prevalent global malignancy requiring diverse treatment modalities.
- Patient experience following bladder cancer treatment is under-researched despite potential for significant morbidity.
- Understanding patient perspectives is crucial for enhancing care quality and outcomes.
Purpose of the Study:
- To evaluate patient experiences in bladder cancer care by linking national survey data with routine health records.
- To identify factors influencing patient experience, including treatment type and co-existing health conditions.
- To provide data-driven recommendations for improving the patient journey in bladder cancer care.
Main Methods:
- Anonymised data from the National Cancer Patient Experience Survey (NCPES) were linked with demographic and treatment data.
- NCPES questions were thematically categorized, focusing on lifestyle, activities of daily living (ADL), symptoms, psychological impact, and body perception.
- Statistical analyses investigated relationships between patient-reported experience, demographics, and treatment modalities.
Main Results:
- Significant differences in patient experience were observed across five key themes.
- No significant differences in experience were found between different bladder cancer drug treatments or radiotherapy types.
- Cystectomy patients reported worse body image and ADL experiences compared to radical radiotherapy patients.
- Patients with long-term health conditions consistently reported worse experiences across all themes.
Conclusions:
- Bladder cancer care significantly impacts patients' quality of life across multiple domains.
- Treatment modality, particularly cystectomy, and pre-existing long-term conditions are key determinants of patient experience.
- Findings highlight critical areas for service review and development to improve patient support and outcomes in bladder cancer care.
