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Our Data, Our Question: Public-Centric Approaches to Administrative Data Analysis.

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Patient and public engagement in health research is crucial. A project analyzing mental health service use in Ontario demonstrated the value of public involvement in health administrative data analysis, offering key lessons for collaboration.

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Area of Science:

  • Health services research
  • Public health policy
  • Data governance

Background:

  • Patient and public engagement is increasingly vital in health research.
  • Analyzing health administrative datasets has historically limited public involvement.
  • ICES in Ontario utilizes a Public Advisory Council (PAC) for strategic guidance.

Purpose of the Study:

  • To explore the integration of public members in analyzing health administrative data.
  • To assess the feasibility and impact of a publicly led research project.
  • To identify lessons learned for enhancing public participation in health data analysis.

Main Methods:

  • The ICES Public Advisory Council (PAC) initiated and guided an analysis project.
  • The project focused on mental health and addiction service utilization.
  • Public members were involved throughout all research stages.

Main Results:

  • The project marked a significant step in public-led research at ICES.
  • Public involvement provided valuable insights throughout the research process.
  • The initiative highlighted opportunities for improved participation and collaboration.

Conclusions:

  • Public and patient engagement can be effectively integrated into health administrative data analysis.
  • This project offers critical lessons for fostering trust and collaboration in health research.
  • Future initiatives should prioritize meaningful public involvement in data stewardship and research.