"It's changed forever": the lived experience of sexuality and sexual functioning in women with cauda equina syndrome (CES)
View abstract on PubMed
Summary
This summary is machine-generated.Cauda Equina Syndrome (CES) significantly alters women's sexuality and intimacy. Many women experience a loss of sexual identity and inadequate support, necessitating a comprehensive rehabilitative approach.
Area Of Science
- Reproductive Medicine
- Neuroscience
- Psychology
Background
- Cauda Equina Syndrome (CES) is a severe spinal condition affecting nerve roots.
- Intimacy and sexuality are crucial aspects of overall well-being.
- The impact of CES on female sexuality is not well understood.
Purpose Of The Study
- To explore women's lived experiences of intimacy, sexuality, and sexual functioning following Cauda Equina Syndrome (CES).
Main Methods
- In-depth semi-structured interviews were conducted with ten women diagnosed with CES.
- Interpretative Phenomenological Analysis (IPA) was used to analyze the qualitative data.
Main Results
- A superordinate theme, "Sexuality forever altered, it's changed completely," emerged.
- Subordinate themes included loss of sexual identity, altered relationships, lack of professional support, challenges in motherhood, and coping mechanisms.
- Women reported feeling devalued and unsupported in addressing sexual concerns.
Conclusions
- CES has a profound and detrimental effect on women's sexuality.
- A multidisciplinary approach is essential to address the multifaceted impacts of CES on sexual health.
- Rehabilitation should integrate physical, emotional, cognitive, and behavioral support for sexual well-being.

