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Updated: Jun 30, 2025

Working with Human Tissues for Translational Cancer Research
Published on: November 26, 2015
Ethics and accountability for clinical trials
Tanya A Barretto1, Wolfram Tetzlaff2, Judy Illes3
1Neuroethics Canada, Division of Neurology, Department of Medicine, University of British Columbia, Vancouver, BC, Canada. tanya.barretto@ubc.ca.
Abstract:
In May 2023, a disclaimer posted on ClinicalTrials.gov dismisses accountability for the accuracy of registered information. For spinal cord injury, inconsistencies in intervention classification, phase designation, and lack of study protocols and results threaten the integrity of the database and put users at risk. An investment in what the resource should be rather than what it is not will give it the authority commensurate with the requirements for its regulatory use and informed decision-making for prospective trial participants.
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