Online decision aid for patients with prostate cancer evaluated by 11 290 patients and 91 urologists in Germany
- Johannes Huber 1, Philipp Karschuck 1, Johanna Valdix 2, Christian Thomas 2, Rainer Koch 1, Andreas Ihrig 3, Tobias Hölscher 4, Tanja Krones 5, Elke Kessler 6, Sabine Kliesch 7, Clemens Linné 8, Paul Enders 9, Maurice-Stephan Michel 10, Christian Wülfing 11, Christer Groeben 1
- 1Department of Urology, Philipps University of Marburg, Marburg, Germany.
- 2Department of Urology, Medical Faculty Carl Gustav Carus, TU Dresden, Dresden, Germany.
- 3Division of Psycho-Oncology, Department of General Internal Medicine and Psychosomatic, University Hospital Heidelberg, Heidelberg, Germany.
- 4Department of Radiotherapy and Radiation Oncology, Faculty of Medicine and University Hospital Carl Gustav Carus, TU Dresden, Dresden, Germany.
- 5Institute of Biomedical Ethics and History of Medicine University of Zürich, University Hospital Zürich, Zürich, Switzerland.
- 6ASD Concepts GmbH & Co. KG - Institut für Patientenzentrierte Versorgungsformen, Reinheim, Germany.
- 7Department of Clinical and Surgical Andrology, Centre for Reproductive Medicine and Andrology, University Hospital Münster, Münster, Germany.
- 8Urological Practice, Dresden, Germany.
- 9Prostate Cancer Patient Support Organization of Germany (BPS), Bonn, Germany.
- 10Department of Urology and Urosurgery, University Hospital Manheim, Mannheim, Germany.
- 11Department of Urology, Asklepios Klinik Altona, Hamburg, Germany.
- 0Department of Urology, Philipps University of Marburg, Marburg, Germany.
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View abstract on PubMed
Summary
This summary is machine-generated.This study evaluated an online prostate cancer decision aid, finding high patient and urologist satisfaction. The tool aids shared decision-making and may increase active surveillance adoption for non-metastatic prostate cancer.
Area Of Science
- Urology
- Health Informatics
- Patient Decision Aids
Background
- Non-metastatic prostate cancer (PCa) management involves complex decisions.
- Online decision aids can support patients in understanding treatment options.
- The 'Entscheidungshilfe Prostatakrebs' tool was developed to aid patients with PCa.
Purpose Of The Study
- To evaluate the nationwide online decision aid 'Entscheidungshilfe Prostatakrebs' for non-metastatic prostate cancer patients.
- To assess patient and urologist perspectives on the tool's utility and satisfaction.
- To determine the tool's impact on shared decision-making and treatment choices.
Main Methods
- Utilized data from 11,290 patients who used the PCa decision aid between June 2016 and December 2020.
- Collected patient data including demographics, diagnosis timelines, preferences, and satisfaction ratings.
- Surveyed 194 urologists regarding their opinions and clinical implementation of the decision aid.
Main Results
- High patient satisfaction (87.7%) was reported with the decision aid.
- Key predictors for choosing observation included higher knowledge and personal preferences.
- Urologists showed high satisfaction (mean score 1.45/6) and 92% recommended the tool; 47% implemented it in practice.
- Half of urologists reported time savings.
Conclusions
- The online prostate cancer decision aid demonstrates high acceptance and satisfaction among both patients and urologists.
- The tool facilitates shared decision-making and offers time efficiency benefits.
- Increased use of this decision aid may promote the adoption of active surveillance and watchful waiting when appropriate.
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