Jove
Visualize
Contact Us
JoVE
x logofacebook logolinkedin logoyoutube logo
ABOUT JoVE
OverviewLeadershipBlogJoVE Help Center
AUTHORS
Publishing ProcessEditorial BoardScope & PoliciesPeer ReviewFAQSubmit
LIBRARIANS
TestimonialsSubscriptionsAccessResourcesLibrary Advisory BoardFAQ
RESEARCH
JoVE JournalMethods CollectionsJoVE Encyclopedia of ExperimentsArchive
EDUCATION
JoVE CoreJoVE BusinessJoVE Science EducationJoVE Lab ManualFaculty Resource CenterFaculty Site
Terms & Conditions of Use
Privacy Policy
Policies

Related Concept Videos

Esophageal Strictures-II: Clinical Features and Management01:26

Esophageal Strictures-II: Clinical Features and Management

69
Patients with esophageal strictures often experience a range of symptoms. Initially, they may have difficulty swallowing solid foods, which can progress to include liquids. Additional symptoms may involve chest pain or discomfort, regurgitating food and fluids, heartburn, unintentional weight loss, coughing or choking during meals, and hoarseness.
Healthcare providers should gather a comprehensive medical history and conduct a physical examination for diagnosis. If esophageal stricture is...
69
Gastroesophageal Reflux Disease II: Clinical Features and Management01:29

Gastroesophageal Reflux Disease II: Clinical Features and Management

78
Gastroesophageal reflux disease, or GERD, is a persistent medical condition that affects many individuals worldwide. Its clinical manifestations can vary greatly, making diagnosis and management challenging for healthcare professionals. The following is a comprehensive overview of the clinical manifestations, assessment, and management strategies for GERD.
Clinical Manifestations
GERD presents itself in a multitude of ways, with symptoms varying from person to person. The hallmark symptoms are...
78
  1. Home
  3. Research Domains
  5. Language, Communication And Culture
  7. Language Studies
  9. German Language
  11. An International Collaborative Initiative To Establish A Quality-of-life Questionnaire For Children And Adolescents With Repair Of Esophageal Atresia In 14 Countries

An International Collaborative Initiative to Establish a Quality-of-Life Questionnaire for Children and Adolescents with Repair of Esophageal Atresia in 14 Countries

The International Ea-Qol Group1,2,3

  • 1The Department of Pediatrics, Institute of Clinical Sciences, University of Gothenburg, 40530 Gothenburg, Sweden.

Children (Basel, Switzerland)
|March 28, 2024

Related Experiment Videos

Conditional Reprogramming of Pediatric Human Esophageal Epithelial Cells for Use in Tissue Engineering and Disease Investigation
10:15

Conditional Reprogramming of Pediatric Human Esophageal Epithelial Cells for Use in Tissue Engineering and Disease Investigation

Published on: March 22, 2017

7.0K
Simultaneous Laryngopharyngeal and Conventional Esophageal pH Monitoring
06:46

Simultaneous Laryngopharyngeal and Conventional Esophageal pH Monitoring

Published on: December 14, 2020

2.8K
Oral Health Assessment by Lay Personnel for Older Adults
08:47

Oral Health Assessment by Lay Personnel for Older Adults

Published on: February 2, 2020

12.7K

View abstract on PubMed

Summary
This summary is machine-generated.

This study successfully created international versions of the Esophageal Atresia Quality of Life (EA-QOL) questionnaire for children with EA. The validated questionnaire ensures consistent quality-of-life assessments across 14 countries.

Area of Science:

  • Pediatric Surgery
  • Quality of Life Research
  • Cross-Cultural Health Studies

Background:

  • The Esophageal Atresia Quality of Life (EA-QOL) questionnaire assesses quality of life in children (aged 8-18) with esophageal atresia (EA).
  • Previous validation was limited to Sweden and Germany.
  • International standardization is crucial for global research and clinical practice.

Purpose of the Study:

  • To describe the international collaborative process of establishing semantically equivalent linguistic versions of the EA-QOL questionnaire.
  • To validate these new versions in 12 additional countries for children aged 8-18 with repaired EA.

Main Methods:

  • Translation of the 24-item EA-QOL questionnaire into 12 target languages.
  • Cognitive debriefing interviews with children with EA and their parents in each country.
Keywords:
childrencognitive debriefing interviewcultural adaptationesophageal atresia

Related Experiment Videos

Conditional Reprogramming of Pediatric Human Esophageal Epithelial Cells for Use in Tissue Engineering and Disease Investigation
10:15

Conditional Reprogramming of Pediatric Human Esophageal Epithelial Cells for Use in Tissue Engineering and Disease Investigation

Published on: March 22, 2017

7.0K
Simultaneous Laryngopharyngeal and Conventional Esophageal pH Monitoring
06:46

Simultaneous Laryngopharyngeal and Conventional Esophageal pH Monitoring

Published on: December 14, 2020

2.8K
Oral Health Assessment by Lay Personnel for Older Adults
08:47

Oral Health Assessment by Lay Personnel for Older Adults

Published on: February 2, 2020

12.7K
  • Evaluation of translations based on item clarity, sensitivity, and feasibility using predefined psychometric criteria.

    • Main Results:

    • All items met clarity criteria in child self-reports across all 12 countries.
    • 8/12 countries met clarity criteria for parent reports.
    • All items met criteria for sensitivity/comfort and feasibility in both child and parent reports.

    Conclusions:

    • Semantically equivalent and psychometrically sound versions of the EA-QOL questionnaire have been established in 14 countries.
    • This facilitates consistent quality-of-life assessment for children with EA globally.
    • The study highlights successful international collaboration in health outcome measure development.
    quality of life
    rare disease