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  1. Home
  3. Caring Burden And Coping With Haemodialysis: A Qualitative Study With Family Caregivers In Sri Lanka.
  1. Home
  3. Caring Burden And Coping With Haemodialysis: A Qualitative Study With Family Caregivers In Sri Lanka.

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Caring burden and coping with haemodialysis: a qualitative study with family caregivers in Sri Lanka.

Chalani Lasanthika1, Ann-Christin Janlöv2, Thamara Amarasekara3

  • 1Department of Nursing and Midwifery, Faculty of Allied Health Sciences, University of Sri Jayewardenepura, Nugegoda, Sri Lanka c.nimna@sjp.ac.lk.

BMJ Open
|April 5, 2024

View abstract on PubMed

Summary
This summary is machine-generated.

Family caregivers in Sri Lanka experience significant burden and exhaustion while caring for loved ones with end-stage kidney disease (ESKD) on haemodialysis. They need psychosocial support and financial aid to cope with caregiving demands.

Keywords:
end stage renal failurepatient-centered carepatientsqualitative researchquality of life

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Area of Science:

  • Nephrology
  • Psychology
  • Sociology

Background:

  • Rising incidence of end-stage kidney disease (ESKD) in Sri Lanka necessitates renal replacement therapy.
  • Haemodialysis is the primary treatment, placing a substantial burden on family caregivers.
  • Understanding caregiver experiences is crucial for developing effective support systems.

Purpose of the Study:

  • To explore the experiences of family caregivers providing haemodialysis to a family member in Sri Lanka.
  • To identify the burdens and coping mechanisms employed by these caregivers.

Main Methods:

  • Qualitative exploratory study design.
  • Purposive sampling of 11 family caregivers at a Sri Lankan government hospital.
  • Semi-structured telephone interviews and qualitative content analysis.

Main Results:

  • An overarching theme of 'striving to hold on and not let go' emerged.
  • Caregivers reported exhaustion, feelings of failure, but also efforts to cope and find meaning.
  • Support from others was a key coping strategy.

Conclusions:

  • Family caregivers face multifaceted burdens requiring psychosocial support and financial assistance.
  • Community support systems and family counselling are vital for caregiver endurance.
  • Advance care planning is essential for managing ESKD patient needs in resource-limited settings.