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  11. Designing Ehealth Interventions For Children With Complex Care Needs Requires Continuous Stakeholder Collaboration And Co-creation

Designing eHealth interventions for children with complex care needs requires continuous stakeholder collaboration and co-creation

Liz van de Riet1,2,3, Anna M Aris4,5, Nick W Verouden4

  • 1Amsterdam UMC, University of Amsterdam, Department of Pediatric Intensive Care, Meibergdreef 9, 1105 AZ Amsterdam, the Netherlands.

PEC Innovation
|April 10, 2024

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View abstract on PubMed

Summary
This summary is machine-generated.

Improving hospital-to-home (H2H) transitions for children with medical complexity (CMC) requires collaborative eHealth solutions. Co-designing with families and healthcare professionals (HCP) led to the

Area of Science:

  • Health Informatics
  • Patient Care Transitions
  • Pediatric Healthcare

Background:

  • Hospital-to-home (H2H) transitions present significant challenges for families of children with medical complexity (CMC) and healthcare professionals (HCP).
  • Existing transition processes often lack integrated support, leading to reactive rather than anticipatory care.
  • There is a need for improved eHealth interventions to support CMC families and HCP during H2H transitions.

Purpose of the Study:

  • To gain deeper insights into the H2H transition process for CMC families and HCP.
  • To develop and evaluate eHealth interventions for improving H2H transitions.
  • To involve CMC families and HCP as end-users in an iterative design process.

Main Methods:

  • A 20-week collaborative approach involving the Dutch Transitional Care Unit consortium, healthcare professionals (HCP), and CMC families.
Keywords:
Children with medical complexityDesign thinkingDigital healthHospital-to-home transition

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  • Utilized the agile SCREAM approach, integrating Design Thinking methods across five iterative sprints.
  • Employed continuous communication to facilitate rapid adaptation and refinement of solutions.

    • Main Results:

    • Identified three critical domains: care coordination, social wellbeing, and emotional support, important to all stakeholders.
    • Developed a prototype application, 'Our Care Team', specifically designed to address H2H transition needs.
    • The iterative, collaborative process ensured the application met the needs of both CMC families and HCP.

    Conclusions:

    • Adaptive interventions are crucial for complex H2H transitions involving CMC families.
    • Empowering all stakeholders through collaborative eHealth solutions promotes anticipatory transitional care.
    • Co-designing eHealth solutions with end-users ensures greater relevance and effectiveness.
    Model development
    SCREAM methodology
    eHealth