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Measuring the Impact of Patient Engagement in Health Research: An Exploratory Study Using Multiple Survey Tools.
Deborah A Marshall1,2, Nitya Suryaprakash3, Stirling Bryan3,4
1Department of Community Health Sciences, University of Calgary, Calgary, Alberta T2N 4Z6, Canada.
Journal of the Canadian Association of Gastroenterology
|April 10, 2024
Summary
Patient engagement significantly influences qualitative research design and conduct. Patient research partners actively shaped research questions, methods, and data interpretation, enhancing patient-centeredness.
Area of Science:
- Health Services Research
- Qualitative Research Methods
- Patient-Centered Care
Background:
- Limited research explores patient engagement (PE) across all qualitative research stages.
- Understanding stakeholder perspectives on PE influence is crucial.
Purpose of the Study:
- To assess the influence and impact of patient engagement (PE) in qualitative research.
- To evaluate PE from the perspectives of patients, researchers, and clinicians.
Main Methods:
- Established two research groups: Patient Researcher-Led and Academic Researcher-Led.
- Recruited patient research partners (PRPs), researchers, and clinicians.
- Administered PE evaluation surveys at multiple project stages.
Main Results:
- Patient research partners (PRPs) demonstrated significant influence on research activities.
- PRPs reported meaningful engagement and perceived impact of their involvement.
- PRPs contributed to operationalizing research questions, study design, materials, recruitment, and data interpretation.
Conclusions:
- Combined PE evaluation tools offer deeper insights into PE's influence.
- PE positively impacts qualitative research design, process, and approach, enhancing patient-centeredness.
- Need for more comprehensive validated tools and diverse study contexts for PE research.
Keywords:
evaluationimpact of patient engagementpatient engagement in researchsurvey methodsvalue of patient engagementMore Related Videos
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