'Kindling the fire' of NHS patient data exploitations: The care.data controversy in news media discourses
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View abstract on PubMed
Summary
This summary is machine-generated.News media coverage of the National Health Service (NHS) England care.data program revealed conflicting visions. Unaddressed concerns about data ownership and privacy contributed to the program
Area Of Science
- Health Informatics
- Media Studies
- Public Policy
Background
- The care.data program aimed to centralize primary care patient data for NHS planning and research.
- It faced significant public opposition, leading to its cancellation in 2016 after 1.5 million opt-outs.
Purpose Of The Study
- To analyze UK news media discourse surrounding the care.data program using the 'fire object' metaphor.
- To understand the visions of purpose and value, transformations, and unheeded concerns within media coverage.
Main Methods
- Examination of UK news media coverage of the care.data initiative.
- Application of the 'fire object' metaphor to analyze discourse patterns and themes.
Main Results
- Media narratives emphasized transforming the NHS, saving lives, and economic growth through data flows.
- Concerns regarding data ownership, commercialization, consent, and NHS privatization were largely absent or marginalized.
- False dichotomies in reporting fueled controversy and contributed to the program's failure.
Conclusions
- Failed data-sharing programs can become 'phantom objects' influencing future initiatives.
- News media plays a crucial role in shaping public understanding of complex health data controversies.
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