The experiences among bereaved family members after a left ventricular assist device (LVAD) deactivation

Area of Science:

• Cardiology
• Palliative Care
• Qualitative Research

Background:

• Left ventricular assist device (LVAD) implantation is increasing, with many patients eventually undergoing deactivation.
• Deactivation decisions are ethically considered, but the experiences of bereaved families are under-researched.
• Understanding family needs during LVAD deactivation is critical for supportive care.

Purpose of the Study:

• To investigate the lived experiences and needs of family members whose loved ones died after LVAD deactivation.
• To explore family perceptions of healthcare team engagement throughout the LVAD deactivation process.

Main Methods:

• Qualitative study involving semi-structured interviews with 11 family members of patients who underwent LVAD deactivation.
• Interviews continued until data saturation, allowing for theme emergence.
• Exploration of experiences before, during, and after LVAD deactivation.

Main Results:

• Six themes emerged: hope for survival, communication, spirituality/faith, absence of physical suffering, positive staff relationships, and post-death care needs.
• Families valued positive interactions with healthcare staff and the absence of physical suffering.
• Communication and post-death care were identified as areas needing improvement.

Conclusions:

• Bereaved families of LVAD recipients have distinct experiences and concerns.
• Effective communication throughout the LVAD journey, not just near end-of-life, is vital.
• Enhancing decision-making support and post-death care can improve the family experience.