Conceptual framework for establishing twins prevention and continuous health promotion programme: a qualitative study

Area of Science:

• Twin studies
• Public Health
• Health Promotion

Background:

• Twin registries face significant challenges in resource allocation, recruitment, and retention.
• Maintaining long-term twin cohorts requires innovative strategies for engagement and support.

Purpose of the Study:

• To assess expert feedback on a pragmatic approach for a continuous health promotion and prevention programme (HPPP).
• To develop a sustainable model for establishing and maintaining twin cohorts through expert consultation.

Main Methods:

• Qualitative study utilizing inductive thematic analysis of focus group discussions (FGDs) with twin study experts.
• Development of a conceptual framework and standardized model for a twin-specific HPPP using ATLAS.ti software.

Main Results:

• Eight focus group discussions were conducted with 16 experts.
• Thematic analysis identified eight key themes and seven subthemes crucial for continuous twin health monitoring.
• A conceptual framework for implementing an HPPP tailored for twins was developed based on expert insights.

Conclusions:

• This study presents a foundational effort to create a practical, continuous HPPP addressing twin cohort challenges.
• The developed framework offers a viable solution for the long-term success of twin health studies.