Impact of paediatric cochlear implantation on family life: a conceptual framework informed by parents

Chané de Beer1, Rebecca J Bennett2,3,4, Robert H Eikelboom1,2,3,5

  • 1Department of Speech-Language Pathology and Audiology, University of Pretoria, Pretoria, South Africa.

PubMed

Insights

Paediatric cochlear implantation significantly impacts family life, affecting finances, education, and relationships. Understanding these effects is crucial for comprehensive family-centered care and support.

Area of Science:

  • Audiology
  • Family Studies
  • Pediatric Health

Background:

  • Limited research exists on the holistic impact of pediatric cochlear implantation on family dynamics.
  • Previous studies primarily focused on parental and sibling adjustments.

Purpose of the Study:

  • To explore and describe the multifaceted effects of pediatric cochlear implantation on overall family life.
  • To capture parents' perceptions of how cochlear implantation influences their family's daily routines and activities.

Main Methods:

  • A concept mapping methodology was employed.
  • Twenty-nine parents of pediatric cochlear implant recipients participated in generating, grouping, and rating statements.

Main Results:

  • Ninety-nine unique statements detailed the impact on family life.
  • Six core concepts emerged: Financial Outlay and Supports, Education and Therapy, Responsibilities and Sacrifices, Extended Family and Community, Spouses and Siblings, and Achievements and Enrichments.

Conclusions:

  • Pediatric cochlear implantation affects numerous aspects of family life.
  • Integrating these findings into pre-operative and ongoing counseling is essential for optimal patient- and family-centered care.
Abstract