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Irradiator Commissioning and Dosimetry for Assessment of LQ α and β Parameters, Radiation Dosing Schema, and in vivo Dose Deposition
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Radiation Reveal: Moving from research engagement to involvement
Lisa Whittaker1,2, Jamie A Dean3,4, Catarina Veiga3
1Wellcome/EPSRC Centre for Medical Engineering, King's College London, London, UK.
British Journal of Cancer
|April 13, 2024
Summary
This public engagement project connected young adults treated with radiotherapy with researchers. It fostered peer support and created valuable resources for patients and medical professionals, highlighting the importance of patient voice in research.
Area of Science:
- Public and Patient Involvement in Research
- Radiation Oncology
- Cancer Research Engagement
Background:
- Radiotherapy is a critical cancer treatment, yet patient experiences and perspectives are often underrepresented in research.
- Effective communication and collaboration between patients and researchers are essential for improving treatment and support.
Purpose of the Study:
- To initiate dialogue between young adults with radiotherapy experience and radiation researchers.
- To identify key information needs and knowledge gaps regarding radiotherapy from a patient perspective.
- To foster a collaborative environment for improving radiotherapy patient engagement.
Main Methods:
- A creative, collaborative, and multi-partner public engagement project titled "Radiation Reveal" was conducted.
- Three 2-hour online workshops brought together ten young adults (aged 17-25) with radiotherapy experience and researchers from Cancer Research UK RadNet City of London.
- The project incorporated continuous feedback from charities and young adults, visual documentation, and post-workshop engagement strategies.
Main Results:
- The project successfully initiated discussions and identified crucial information patients wished they knew about radiotherapy.
- Additional benefits included enhanced peer support, participants' ongoing engagement in research, formation of friendships and support groups.
- The initiative led to the creation and national dissemination of "top ten tips" for medical professionals and social media resources.
Conclusions:
- Dedicated coordination and strong connections with national cancer charities are vital for successful patient engagement projects.
- Incorporating ongoing feedback from patients and charities, alongside sustained engagement, significantly amplifies project impact.
- This project underscores the value of integrating the patient voice into all aspects of research and development in radiotherapy.
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