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Adult congenital heart care in the COVID-19 era, and beyond: A call for action
Michael A Gatzoulis1,2,3, Natali Chung1,3, Paolo Ferrero4
1Adult Congenital Heart Centre and National Centre for Pulmonary Arterial Hypertension, Royal Brompton & Harefield NHS Trust, National Heart & Lung Institute, Imperial College, London, UK.
Insights
The COVID-19 pandemic necessitates enhanced support for adult congenital heart disease (ACHD) patients, advocating for improved care models and patient experiences post-pandemic.
Area of Science:
- Cardiology
- Public Health
- Infectious Diseases
Background:
- The COVID-19 pandemic presents unprecedented global challenges.
- The pandemic significantly impacts not only health but also economic and psychosocial well-being.
- Vulnerable populations, including the elderly and disabled, require special attention.
Purpose of the Study:
- To outline a call for action to support and protect adult congenital heart disease (ACHD) patients during the COVID-19 crisis.
- To propose a vision for an improved model of ACHD care for the post-pandemic era.
- To emphasize the broader applicability of discussed principles beyond ACHD patients.
Main Methods:
- This viewpoint article presents a strategic call to action.
- It synthesizes current challenges and proposes future healthcare improvements.
- The approach involves a global perspective on patient care and societal well-being.
Main Results:
- The pandemic highlights the need for robust support systems for vulnerable patient groups.
- A revised model of ACHD care is proposed to enhance patient journeys and healthcare experiences.
- The article stresses the importance of self-care and collective well-being during crises.
Conclusions:
- The COVID-19 pandemic underscores the need for adaptive and improved healthcare models, particularly for ACHD patients.
- The proposed changes aim to create a better life journey and healthcare experience for ACHD patients.
- The principles discussed have wide-ranging implications for public health and societal care, emphasizing inclusivity and self-reflection.
Abstract:
While virus epidemics are nothing new to man, the scale, speed of global spread and immediacy of the COVID-19 pandemic have been truly unprecedented [1]. The entire world has been turned on its head in less than a few months, with major implications beyond disease burden and loss of life, threatening the economic status quo and human psychosocial balance and wellbeing not only for patients, but for all of us. The primary aim of our Call for Action Viewpoint was to support and protect our adult congenital heart disease (ACHD) patients and their needs during these challenging and uncertain times. This goal had to be met while we, as individuals, teams, institutions and nations, came together in a global effort to combat this aggressive virus, that appears to spare no organs or systems, nor any borders, geographic or other. As with any crisis, there is always opportunity: we are submitting herewith a vision for a different and better model of ACHD care, and for a better life journey and health care experience for our patients, that should be in place in the aftermath of the Covid-19 pandemic. Many of the points and principles discussed in this article, need not be confined to ACHD patients, but have a broader reach. And we must not forget nor neglect the most vulnerable in society at this time, namely the elderly, disabled and other dependent or disadvantaged groups in this "We Are One" global operation. Last but not least, this maybe the time to take better care of ourselves (and others) and reflect on life.
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