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Factors promoting and hindering resilience in youth with inflammatory bowel disease: A descriptive qualitative study
Lili You1, Siyao Wang1, Yangyang Wang2
1Department of Gastroenterology, Peking Union Medical College Hospital, Beijing, China.
Insights
Understanding resilience in youth with inflammatory bowel disease (IBD) is key. Factors like self-management and family support promote resilience, while stigma and societal pressures hinder it in young IBD patients.
Area of Science:
- Pediatric gastroenterology
- Psychosocial health
- Chronic illness management
Background:
- Inflammatory bowel disease (IBD) significantly impacts the psychosocial well-being of young individuals.
- Resilience is a critical factor for navigating the challenges associated with chronic conditions like IBD.
- Kumpfer's resilience framework offers a valuable lens for examining protective and risk factors in vulnerable youth.
Purpose of the Study:
- To identify and explore factors that promote and hinder resilience in adolescents and young adults diagnosed with IBD.
- To apply Kumpfer's resilience framework to understand the unique challenges faced by youth with IBD.
- To inform the development of targeted interventions supporting resilience in this population.
Main Methods:
- A descriptive qualitative study employing an interpretative approach.
- Purposive sampling of 10 youths with IBD from a tertiary hospital in Beijing, China.
- Data collection via semi-structured interviews (December 2020 - March 2021) and directed content analysis.
Main Results:
- Thirteen distinct themes emerged, categorized into personal and environmental factors.
- Promoting factors include illness acceptance, self-management, prior treatment experience, life goals, family support, medical care, and peer encouragement.
- Hindering factors encompass stigma, communication deficits, negative cognition, societal misunderstanding, financial strain, and academic/employment pressures.
Conclusions:
- Healthcare professionals require heightened awareness of individual and external factors influencing resilience in pediatric IBD patients.
- Developing targeted nursing strategies is essential to foster internal strengths and provide external support.
- Interventions should focus on enhancing the resilience of young individuals managing inflammatory bowel disease.
Aim:
To explore factors promoting and hindering resilience in youth with inflammatory bowel disease (IBD) based on Kumpfer's resilience framework.
Design:
A descriptive qualitative study design with an interpretative approach was used.
Methods:
Participants consisted of 10 youths with IBD from a tertiary hospital in Beijing (China) recruited using the purposive sampling method. Data were collected by semi-structured interviews from December 2020 to March 2021. The directed content analysis was performed for data analysis.
Results:
Both promoting factors and hindering factors could be divided into personal factors and environmental factors. Thirteen themes were identified. The promoting factors included acceptance of illness, strict self-management, previous treatment experience, life goals, family support, medical support and peer encouragement. Stigma, lack of communication, negative cognition, societal incomprehension, economic pressure and academic and employment pressure were hindering factors.
Conclusion:
Health care professionals need to develop greater awareness of factors, stemming from both the individual and the outside world, that hinder or promote resilience in order to aid young patients with IBD. Building targeted nursing measures to excavate the internal positive quality of patients, provide external support and promote the development of resilience.
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