The Effect of Using a Client-Accessible Health Record on Perceived Quality of Care: Interview Study Among Parents and Adolescents

Janine Benjamins ^1,2,3, Emely de Vet ^1,4, Chloe A de Mortier ^5,6,7

⁰Chairgroup Consumption and Healthy Lifestyles, Wageningen University & Research, Wageningen, Netherlands.

Journal of Participatory Medicine +

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April 23, 2024

View abstract on PubMed

Summary

Patient-accessible electronic health records (PAEHRs) enhance perceived quality of care by improving information access and involvement. However, ensuring equitable access and improving professional communication are crucial for maximizing PAEHR benefits.

Area Of Science

Health Informatics
Patient Engagement
Quality of Care Research

Background

Patient-accessible electronic health records (PAEHRs) are theorized to improve healthcare quality across multiple dimensions.
Limited research exists on PAEHRs' impact on perceived care quality among pediatric populations.
A Dutch PAEHR, Iuvenelis, was developed for child and youth preventive care, granting parents and adolescents access and management capabilities.

Purpose Of The Study

To evaluate the contribution of the Iuvenelis PAEHR to perceived quality of care from the end-users' perspective.
To explore how parents and adolescents experience the impact of PAEHR use on their healthcare interactions.

Main Methods

Qualitative phenomenological study utilizing in-depth interviews with 20 parents and adolescents.
Participants represented diverse demographics (sex, education, nationality, location).
Interviews explored expectations and experiences post-demonstration, with 54% of parents initially unaware of the client portal.

Main Results

Users reported enhanced information access, increased involvement, and greater control over health data with Iuvenelis.
Parents from migratory backgrounds, though initially less informed, anticipated improved understanding and control.
Concerns regarding equity in access for vulnerable groups were raised, alongside positive usability feedback.
Areas for improvement included broader interdisciplinary use and report quality.

Conclusions

The Iuvenelis PAEHR positively impacts perceived person-centeredness, timeliness, safety, efficiency, and integration of care.
Addressing equity concerns, particularly for vulnerable populations, and improving client information about the portal are necessary.
Enhancing professional-centered attitudes and potentially incorporating quantitative data are recommended to maximize PAEHR benefits.

Keywords:

EHR adolescent adolescent health services care quality child health child health services child welfare client perception client portal electronic health record parent patient experience patient portal pediatrics perceived quality of care personal health record qualitative study quality of care