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[Participation in children's hospitals: approaches to participatory formats for paediatric patients]

Julia Bauer1,2,3, Holly Clark2, Michaela Coenen1,3

  • 1Lehrstuhl für Public Health und Versorgungsforschung, Ludwig-Maximilians-Universität München, Medizinische Fakultät, Institut für medizinische Informationsverarbeitung, Biometrie und Epidemiologie - IBE, München, Germany.

Gesundheitswesen (Bundesverband Der Arzte Des Offentlichen Gesundheitsdienstes (Germany))
|April 23, 2024
PubMed

Insights

Children and young people have a right to participate in healthcare decisions. Developing sustainable participation formats in German pediatric settings is crucial for implementing these rights effectively.

Area of Science:

  • Child Health
  • Bioethics
  • Health Services Research

Context:

  • The UN Convention on the Rights of the Child emphasizes children's participation in decisions affecting them, especially in healthcare.
  • Established international models like Children's Councils and Young Person's Advisory Groups exist for patient participation.
  • Germany currently lacks widespread, established formats for young patients' involvement in healthcare decisions and research.

Purpose:

  • To highlight the importance of developing effective and sustainable participatory formats for young patients in Germany.
  • To advocate for the creation of structures that enable meaningful involvement of children and adolescents in their healthcare.
  • To bridge the gap between international best practices and the current situation in German pediatric healthcare.

Summary:

  • Children and young people possess a right to participate in all decisions impacting them, particularly within pediatric healthcare settings.
  • While international examples of patient participation exist, Germany needs to develop and implement similar structures.
  • Suitable formats must be realistic for clinical and research settings, ensuring long-term sustainability and effectiveness.

Impact:

  • Strengthening the consideration of children's rights within the German health system.
  • Enhancing the quality of care and research by incorporating young patients' perspectives.
  • Promoting the development, sustainable implementation, and evaluation of participatory formats for pediatric patients.

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