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Relatives' needs in terms of bereavement care throughout euthanasia processes: A qualitative study
Charlotte Boven1, Let Dillen2, Liesbeth Van Humbeeck1
1Department of Geriatric Medicine, Ghent University Hospital, Ghent, Belgium.
Bereaved relatives value proactive care during euthanasia. Healthcare providers aim to meet these needs, though aftercare is inconsistent, highlighting a gap in supportive services for families navigating end-of-life care.
Area of Science:
- Palliative Care
- Bereavement Studies
- End-of-Life Care Research
Background:
- Bereavement care during euthanasia processes is crucial for supporting families.
- Understanding relatives' needs and healthcare providers' responses is essential for improving end-of-life care.
- Existing literature and guidelines on needs-based bereavement care in euthanasia are limited.
Purpose of the Study:
- To explore the needs of relatives during euthanasia processes.
- To examine how healthcare providers respond to these needs.
- To assess the congruence between relatives' and healthcare providers' reports on care.
Main Methods:
- Phenomenological design utilizing reflexive thematic analysis.
- Interviews conducted with 19 relatives and 47 healthcare providers.
- Qualitative data analyzed to identify key themes and subthemes.
Main Results:
- Relatives' needs during euthanasia were identified across five main themes.
- Relatives appreciated proactive need fulfillment by healthcare staff, even if needs were not explicitly stated.
- Healthcare providers aimed to support the grief process, but consistent aftercare was not always provided.
Conclusions:
- Findings offer directions for healthcare professionals to provide needs-based bereavement care during euthanasia.
- Proactively addressing relatives' unique needs before and during the loss can positively impact their grief process.
- Emphasizes the importance of tailored support for families facing end-of-life decisions.
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