'Too young to sit at home': a qualitative study conducted among employees with young-onset dementia and their relatives
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View abstract on PubMed
Summary
This summary is machine-generated.Employees with young-onset dementia (YOD) desire to work, emphasizing the need for workplace support. Understanding their experiences and values is crucial for maintaining employment and identity.
Area Of Science
- Neuroscience
- Occupational Health
- Psychology
Background
- Young-onset dementia (YOD) symptoms frequently manifest in the workplace, leading to performance issues and job loss.
- Understanding the unique challenges faced by individuals with YOD in employment is critical.
Purpose Of The Study
- To investigate the lived experiences of employees with YOD and their relatives.
- To explore work values and identify support needs for individuals with YOD in the workplace.
Main Methods
- Semi-structured interviews were conducted with employees and relatives affected by YOD.
- Focus group discussions were used to prioritize findings from interviews.
- Inductive thematic analysis was applied to qualitative data.
Main Results
- A strong "desire to work" emerged as a central theme among individuals with YOD.
- Key contributing factors included the importance of diagnosis, awareness, open communication, work adjustments, and support.
- Experiences of employees and relatives provided insights into workplace challenges and needs.
Conclusions
- The findings underscore the significant desire of individuals with YOD to remain employed.
- This desire forms a basis for developing targeted workplace support tools and guidance.
- Interventions can help preserve self-confidence and identity for those with YOD by enabling them to work within their capabilities.
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