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Related Experiment Video

Updated: Jun 27, 2025

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Identifying priorities for Australian disability research using Q methodology.

Simon Garbellini1, Angela Dew2, Christine Imms3

  • 1School of Allied Health, Curtin University, Bentley, WA, Australia; Kids Rehab WA, Perth Children's Hospital, Nedlands, WA, Australia.

Disability and Health Journal
|April 26, 2024
PubMed
Summary

Research priorities for disability in Australia should align with the lived experiences of people with disability. Four key viewpoints emerged, focusing on service delivery, understanding diverse experiences, system design, and mental health support.

Keywords:
ConsumersDisabilityLived experiencePrioritiesQ methodologyResearch

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Area of Science:

  • Disability Studies
  • Health Services Research
  • Social Policy

Background:

  • Globally, over one billion people live with disability.
  • Traditional research priorities may not reflect the needs of people with lived experience.

Purpose of the Study:

  • To explore and inform Australian disability research agendas.
  • Incorporate perspectives of people with disability.

Main Methods:

  • Q methodology used to identify key research priorities.
  • Purposive sampling of people with disability, families, organizations, and researchers.
  • Factor analysis revealed four distinct participant viewpoints.

Main Results:

  • 52 participants (37% people with disability) sorted 25 statements.
  • Viewpoint 1: Lifespan service design and delivery.
  • Viewpoint 2: Understanding diverse disability experiences.
  • Viewpoint 3: Designing systems for individual, family, and societal impact.
  • Viewpoint 4: Addressing mental health for all with disability.

Conclusions:

  • Identified viewpoints emphasize service design and delivery to counter disabling environments and attitudes.
  • Provides a framework for future disability research co-designed with people with lived experience.