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Published on: April 14, 2016
Definition and Assessment of Paediatric Breakthrough Pain: A Qualitative Interview Study
Eleanor Dawson1, Katie Greenfield1, Bernie Carter2
1School of Psychology, University of Southampton, Highfield SO17 1BJ, UK.
Insights
Breakthrough pain in children with life-limiting conditions is inconsistently assessed, leading to underdiagnosis and undertreatment. A validated assessment tool is needed to improve care and quality of life for these young patients.
Area of Science:
- Palliative Care
- Pain Management
- Pediatrics
Background:
- Breakthrough pain is common in children with life-limiting or life-threatening conditions.
- Current assessment methods for breakthrough pain in pediatric palliative care are not standardized, leading to underdiagnosis and undertreatment.
- This under-management negatively impacts children's quality of life.
Purpose of the Study:
- To explore healthcare professionals' definitions and assessment practices of breakthrough pain in pediatric palliative care.
- To understand healthcare professionals' attitudes towards a validated breakthrough pain assessment tool for children.
- To identify essential features for developing a standardized pediatric breakthrough pain assessment.
Main Methods:
- A descriptive qualitative interview study was conducted.
- Semi-structured interviews were performed with 29 healthcare professionals in UK pediatric palliative care.
- Inductive thematic analysis was used to analyze the interview data.
Main Results:
- Five key themes emerged: the elusive nature of breakthrough pain, current assessment practices, positive attitudes towards a validated tool, reservations about its implementation, and desired features.
- Healthcare professionals' definitions and assessment of breakthrough pain in pediatric palliative care are inconsistent.
- There is a significant need for a validated assessment questionnaire.
Conclusions:
- The inconsistent assessment of breakthrough pain in pediatric palliative care highlights a critical gap in care.
- A validated assessment tool is essential to improve the diagnosis and management of breakthrough pain in children.
- Increased education for healthcare professionals on breakthrough pain assessment is recommended to enhance patient outcomes.
Abstract:
Infants, children and young people with life-limiting or life-threatening conditions often experience acute, transient pain episodes known as breakthrough pain. There is currently no established way to assess breakthrough pain in paediatric palliative care. Anecdotal evidence suggests that it is frequently underdiagnosed and undertreated, resulting in reduced quality of life. The development of a standardised paediatric breakthrough pain assessment, based on healthcare professionals' insights, could improve patient outcomes. This study aimed to explore how healthcare professionals define and assess breakthrough pain in paediatric palliative care and their attitudes towards a validated paediatric breakthrough pain assessment. This was a descriptive qualitative interview study. Semi-structured interviews were conducted with 29 healthcare professionals working in paediatric palliative care across the UK. An inductive thematic analysis was conducted on the data. Five themes were generated: 'the elusive nature of breakthrough pain', 'breakthrough pain assessment', 'positive attitudes towards', 'reservations towards' and 'features to include in' a paediatric breakthrough pain assessment. The definition and assessment of breakthrough pain is inconsistent in paediatric palliative care. There is a clear need for a validated assessment questionnaire to improve assessment, diagnosis and management of breakthrough pain followed by increased healthcare professional education on the concept.
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