Shared Reading of the Families With the Children With Chronic Disease
Şenay Güven Baysal1, Mehmet Akif Büyükavcı2, Esra Akdemir2
1Division of Developmental Pediatrics, Department of Pediatrics, Gazi Yaşargil Training and Research Hospital, Diyarbakır, Türkiye.
Insights
Mothers of children with chronic diseases rarely engage in shared reading, despite understanding its importance. This highlights a gap in supporting early literacy for vulnerable children.
Area of Science:
- Pediatric Health
- Family Studies
- Early Literacy
Background:
- Shared reading is crucial for child development.
- Children with chronic diseases may face unique challenges impacting family activities.
- Understanding parental engagement in shared reading is vital for intervention.
Purpose of the Study:
- To evaluate shared reading practices in families of children with chronic diseases.
- To compare shared reading activities between children with chronic and acute health conditions.
- To identify barriers to shared reading in at-risk populations.
Main Methods:
- A comparative study involving mothers of children aged 2-6 years.
- Utilized the "Child-Parent Shared Reading Activities Scale" and a sociodemographic form.
- Included a control group of mothers with children experiencing acute health problems.
Main Results:
- 57.6% of mothers of chronically ill children reported almost never engaging in shared reading.
- All mothers recognized the importance of reading.
- Mothers in the chronic disease group faced difficulties supporting shared reading activities.
Conclusions:
- Significant deficits in shared reading exist among families of children with chronic illnesses.
- Knowledge of reading's importance does not translate to consistent practice in this group.
- Targeted support is needed to promote shared reading for children with chronic health conditions.
Abstract:
The aim of the study is to evaluate shared reading of families of children with chronic diseases. The mothers of children aged 2 to 6 years with chronic health problems who applied to the pediatric outpatient clinic between January and May 2022 were the study group, and the mothers of children with an acute health problem were the control group. The sociodemographic information form and "Child-Parent Shared Reading Activities Scale" were applied. At the end of the interview, 3 questions about shared reading were asked. A total of 187 children were enrolled in the study: 92 and 95 in the chronic disease group and control group, respectively. 57.6% of mothers of chronically ill children reported that the parents almost never did shared reading with their child. It was found that all mothers knew the importance of reading, but they could not support especially in the risky chronic disease group.
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