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Comparing Attitudes Toward Different Consent Mediums: Semistructured Qualitative Study.

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Summary
This summary is machine-generated.

Infographics enhance understanding and engagement in health data sharing consent forms, outperforming other formats like text or video. User archetypes and design elements like structure are key to effective consent.

Keywords:
consentdata governancehealth data sharingtransparencyvisualization

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Area of Science:

  • Health Informatics
  • Human-Computer Interaction
  • Bioethics

Background:

  • Traditional plain-text consent forms are insufficient for evolving digital data sharing needs.
  • Designing effective consent forms is challenging, with varied effectiveness of multimedia elements.
  • Improper use of graphics and video can negatively impact user comprehension and consent.

Purpose of the Study:

  • To explore adult expectations and experiences with various consent formats (infographic, video, text, newsletter, comic) for health data sharing.
  • To determine the appropriateness of different mediums for consent.
  • To identify specific elements within each medium that enhance user engagement with consent content.

Main Methods:

  • Mock consent forms were developed in infographic, video, text, newsletter, and comic formats.
  • Semistructured interviews were conducted with 24 adults to gather expectations and feedback on consent mediums.
  • Qualitative co-coding of transcribed interviews identified themes related to engaging elements and medium preferences.

Main Results:

  • Participant archetypes, such as the 'Trust Seeker,' emerged, highlighting varied decision-making goals.
  • Infographics were ranked highest for improving understanding, prioritizing information, and suitability for health data sharing consent.
  • Preferred engaging elements included clear structure, step-by-step organization, and high readability across all formats.

Conclusions:

  • User archetypes and specific design elements can inform the creation of more effective consent forms.
  • Infographics show promise for enhancing user engagement and understanding in health data consent scenarios.
  • Medium preferences are highly contextual, necessitating further research into optimal consent design.