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  11. "you Can Be Cured, But Cancer Never Leaves You Behind": An Interdisciplinary Approach Into The Embodied Cancer Experiences Among Adult Colombian Childhood/adolescent Cancer Survivors

"You can be cured, but cancer never leaves you behind": an interdisciplinary approach into the embodied cancer experiences among adult Colombian childhood/adolescent cancer survivors

Natalia Godoy-Casasbuenas1, Yazmin Cadena-Camargo2, Nicole Rodríguez3

  • 1Ph.D. Program in Clinical Epidemiology, Department of Clinical Epidemiology and Biostatistics, Faculty of Medicine, Pontificia Universidad Javeriana, Bogotá, Colombia.

Journal of Psychosocial Oncology
|May 3, 2024

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View abstract on PubMed

Summary
This summary is machine-generated.

Childhood cancer survivors in Colombia experience their altered bodies throughout life, adapting to changes and carrying lasting physical traces. This qualitative study explores their embodied cancer experiences from diagnosis to adulthood.

Area of Science:

  • Qualitative research
  • Phenomenology
  • Cancer survivorship studies

Background:

  • Childhood and adolescent cancer survivors (CACS) are understudied in Central and South America.
  • Existing research often focuses on high-income settings and biomedical/psychological perspectives.
  • These perspectives overlook the subjective experience of living with a disabled body post-cancer.

Purpose of the Study:

  • To explore the embodied experiences of Colombian adults who survived childhood or adolescent cancer.
  • To understand how CACS relate to their altered bodies and the world.
  • To investigate the long-term impact of cancer on survivors' sense of self.

Main Methods:

  • Life-story interviews and focus groups with seven CACS.
  • Phenomenological insights integrated into the analysis.
Keywords:
cancer survivorshipchildhood/adolescent cancerembodimentlife stories

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  • Thematic analysis focused on embodied aspects of participants' experiences.

    • Main Results:

    • Three themes emerged: awareness of body changes due to cancer/treatment, diverse bodily adaptations, and enduring bodily traces of the cancer experience.
    • Participants' sense of self was significantly impacted by their altered bodies.
    • The cancer experience created lasting physical and psychological effects into adulthood.

    Conclusions:

    • Cancer survivorship is an embodied experience that lasts a lifetime for CACS.
    • Survivors' relationship with their bodies and the world is fundamentally altered.
    • Bodily traces of cancer persist into the present and future, influencing survivors' lives.
    phenomenology