Preventing falls in multiple sclerosis: a qualitative study on user requirements for a self-management programme.

Area of Science:

• Neurology
• Rehabilitation Science
• Health Psychology

Background:

• Falls are a significant concern for people with Multiple Sclerosis (MS), impacting mobility and quality of life.
• Existing fall management strategies may not adequately address the diverse needs of ambulatory and non-ambulatory individuals with MS.

Purpose of the Study:

• To explore the perspectives of people with MS (PwMS) and healthcare professionals (HCPs) on falls and their management.
• To inform the design of a user-centered self-management program for fall prevention in MS.

Main Methods:

• Qualitative study utilizing Design Thinking workshops with 12 PwMS and 7 HCPs.
• Data collected through field notes and digital post-it notes, analyzed using inductive qualitative content analysis.

Main Results:

• Identified two key themes: 'Managing the complexity of fall-risk behaviour' and 'Embracing diversity to establish group engagement'.
• PwMS require support for managing daily fall risks and benefit from peer learning to meet individual needs and enhance outcomes.

Conclusions:

• A fall prevention program for PwMS should incorporate self-tailored behavioral strategies.
• Interactive learning activities involving peer support are crucial for effective self-management of fall risk, irrespective of ambulation status.