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Scandinavian perspectives on life support at the border of viability
1Department of Neonatology, St. Olavs Hospital University Hospital, Trondheim, Norway.
Insights
Neonatal intensive care advances allow preterm infant rescue, but ethical dilemmas arise at viability
Area of Science:
- Neonatal medicine
- Medical ethics
- Perinatal care
Background:
- Advances in neonatal medicine enable the rescue of extremely preterm infants.
- Decreasing gestational age correlates with increased long-term vulnerability and treatment burden.
- A "grey zone" exists regarding the justification of life support for periviable infants.
Purpose of the Study:
- To provide an overview of national consensus documents and practices in Norway, Sweden, and Denmark regarding periviable infants.
- To reflect on the ethical justification for differing approaches to periviable infant care in Scandinavia.
- To explore the decision-making process for life support at the border of viability.
Main Methods:
- Review of national consensus documents.
- Analysis of clinical practices in Norway, Sweden, and Denmark.
- Ethical reflection on differing Scandinavian approaches to periviable infants.
Main Results:
- Swedish guidelines and practices are more rescue-focused at the lower limit of viability.
- Danish guidelines prioritize parental involvement in decision-making for periviable infants.
- Norwegian practices appear to be intermediate between Sweden and Denmark.
Conclusions:
- Scandinavian countries exhibit distinct approaches to periviable infant care despite cultural similarities.
- Ethical justifications for these differing approaches warrant further investigation.
- The "grey zone" at the border of viability necessitates clear ethical frameworks and guidelines.
Abstract:
Advances in neonatal medicine have allowed us to rescue extremely preterm infants. However, both long-term vulnerability and the burden of treatment in the neonatal period increase with decreasing gestational age. This raises questions about the justification of life support when a baby is born at the border of viability, and has led to a so-called "grey zone", where many professionals are unsure whether provision of life support is in the child's best interest. Despite cultural, political and economic similarities, the Scandinavian countries differ in their approach to periviable infants, as seen in their respective national guidelines and practices. In Sweden, guidelines and practice are more rescue-focused at the lower end of the border of viability, Danish guidelines emphasizes the need to involve parental views in the decision-making process, whereas Norway appears to be somewhere in between. In this paper, I will give an overview of national consensus documents and practices in Norway, Sweden and Denmark, and reflect on the ethical justification for the different approaches.
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