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Identifying Existing Guidelines, Frameworks, Checklists, and Recommendations for Implementing Patient-Reported
Randi Thisakya Jayasinghe1, Susannah Ahern1, Ashika D Maharaj1
1School of Public Health and Preventive Medicine, Monash University, Melbourne, Australia.
JMIR Research Protocols
|May 21, 2024
Summary
This review identifies guidelines for implementing patient-reported outcome measures (PROMs) in clinical quality registries. Findings will inform a new guideline for PROMs implementation in CQRs.
Area of Science:
- Health Outcomes Research
- Clinical Informatics
- Evidence Synthesis
Background:
- The use of patient-reported outcome measures (PROMs) to evaluate health outcomes is increasing globally.
- There is a need to identify existing guidelines, frameworks, and recommendations for PROMs implementation.
- Particular focus is placed on the application of these methodologies within clinical quality registries (CQRs).
Purpose of the Study:
- To conduct a scoping review of publications on PROMs implementation guidelines.
- To identify and analyze existing guidelines, frameworks, checklists, and recommendations for PROMs implementation.
- To inform the development of a new guideline for PROMs implementation specifically for CQRs.
Main Methods:
- A comprehensive literature search across multiple databases (MEDLINE, Embase, CINAHL, PsycINFO, Cochrane) and gray literature was performed.
- Inclusion and exclusion criteria were applied to identify relevant publications on PROMs implementation methodologies.
- Data extraction focused on bibliographic information, purpose of PROMs use, and details of identified guidelines, frameworks, or checklists, followed by narrative synthesis.
Main Results:
- The review is ongoing, with database searches completed in March 2024.
- Title/abstract screening, full-text review, and data extraction are scheduled for completion by May 2024.
- The full review is anticipated to conclude by the end of August 2024.
Conclusions:
- The scoping review will provide evidence on existing methodologies for PROMs implementation.
- Findings will guide the development of a new, tailored guideline for PROMs implementation in CQRs.
- This work supports the broader project aim of enhancing PROMs utilization in clinical quality measurement.
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