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Knowledge Helps: Handling Rare Diseases in Regular Schools.

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Teachers participating in a blended learning seminar showed improved skills and confidence in supporting students with rare diseases. This training is vital for fostering inclusive school environments for children with rare conditions.

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Area of Science:

  • Pedagogy
  • Special Education
  • Public Health

Background:

  • Medical advancements enable more children with rare diseases to attend school, highlighting the need for teacher training.
  • Inclusive education requires educators to possess specific skills for addressing the needs of students with rare diseases.
  • A blended learning seminar was developed to equip teachers with knowledge and competencies regarding rare diseases in schools.

Purpose of the Study:

  • To evaluate the effectiveness of a blended learning seminar designed to enhance teachers' understanding and skills in managing rare diseases in educational settings.
  • To assess the impact of the seminar on teachers' general and teacher self-efficacy.
  • To measure self-assessed improvements in theoretical and practical skills for supporting students with rare diseases.

Main Methods:

  • A quantitative longitudinal study involving 21 participants using pretest and posttest assessments over a four-month interval.
  • A blended learning format incorporating videos, texts, case studies, and online lectures.
  • A questionnaire assessing competence in rare diseases and general/teacher self-efficacy.

Main Results:

  • A statistically significant increase in both general and teacher self-efficacy was observed.
  • Participants reported improvements in their theoretical and practical skills for supporting students with rare diseases.
  • Medium effect sizes indicated a meaningful impact of the seminar on participants' confidence and abilities.

Conclusions:

  • The blended learning seminar effectively enhanced teachers' self-efficacy and skills in addressing rare diseases in schools.
  • Expanding such training programs is recommended to improve support for students with rare diseases.
  • Raising awareness and competence among school professionals is crucial for creating supportive educational environments for children with rare conditions.