International network for ALS research and care (INARC)

Area of Science:

• Neurology
• Clinical Research
• Patient Care

Background:

• Amyotrophic Lateral Sclerosis (ALS) requires multidisciplinary care and research efforts.
• Non-physician staff play a crucial role in ALS clinical practice and research.
• A dedicated platform for these professionals was lacking.

Purpose of the Study:

• To introduce the International Network for Amyotrophic Lateral Sclerosis (ALS) Research and Care (INARC).
• To detail the formation and inaugural meeting of INARC in 2023.
• To outline key discussion topics, lessons learned, and challenges within the INARC network.

Main Methods:

• Establishment of a professional network (INARC) in 2022.
• Convening the first INARC meeting in 2023.
• Facilitating discussions and knowledge exchange among non-physician ALS professionals.

Main Results:

• INARC provides a dedicated platform for non-physician ALS professionals.
• The 2023 meeting facilitated exchange of experiences and expertise.
• Identified key areas for improvement in ALS care and research through member discussions.

Conclusions:

• INARC's formation addresses a critical need for professional networking in ALS.
• Continued collaboration through INARC is expected to improve problem-solving and advance ALS care and research standards.