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Cancer stigma: the need for policy and programmatic action
Sonali Elizabeth Johnson1, Mélanie Samson2
1Knowledge, Advocacy and Policy, Union for International Cancer Control, Geneva, Switzerland.
Journal of the National Cancer Institute. Monographs
|June 5, 2024
Summary
Cancer stigma negatively affects patient quality of life and mental health, particularly in low- and middle-income countries. Developing targeted strategies with community partners is crucial for effective cancer control programs.
Area of Science:
- Oncology
- Public Health
- Sociology
Background:
- Cancer is frequently associated with significant social stigma globally.
- This stigma adversely affects patients' quality of life and mental well-being.
- Limited research addresses cancer stigma in low- and middle-income countries (LMICs).
Purpose of the Study:
- To examine the multifaceted dimensions of cancer stigma.
- To inform program managers and policymakers on mitigating cancer stigma.
- To emphasize the need for context-specific anti-stigma strategies in cancer control.
Main Methods:
- Insights were gathered from participants in a Union for International Cancer Control (UICC) program.
- Focus was on cancer patient organizations in LMICs.
- The commentary synthesizes lived experiences and program insights.
Main Results:
- Cancer stigma presents diverse challenges impacting patients' lives.
- Understanding stigma's influence on health-seeking behaviors is vital.
- Collaboration with civil society and patient groups is essential for effective interventions.
Conclusions:
- Reducing cancer stigma requires integrated strategies within cancer control programs.
- Community-based organizations and individuals with lived experience are key partners.
- Addressing stigma is critical for improving patient outcomes and quality of life in LMICs.
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