Impacts of raising a child with a feeding difficulty in Aotearoa New Zealand
Stacey-Louise Corney1, Givona Rush1, Sarah A Taylor2
1Speech-language Therapist, School of Psychology, The University of Auckland, Auckland, New Zealand.
Insights
Financial and psychological challenges significantly impact families with children facing feeding difficulties. Many parents experience strain due to work barriers and non-medical costs, highlighting a need for better support systems.
Area of Science:
- Pediatric feeding disorders
- Health economics
- Parental mental health
Background:
- Economic barriers to support for pediatric feeding difficulties cause significant parental stress and child health risks.
- Children with feeding difficulties may develop negative relationships with food and face health issues like malnutrition or choking.
Purpose of the Study:
- To explore the financial and psychological impact on parents and caregivers of children with feeding difficulties in Aotearoa.
- To identify specific barriers contributing to financial strain and psychological distress.
Main Methods:
- An online survey was administered to 88 parents/caregivers of children with feeding difficulties in Aotearoa.
- The survey included 34 questions, primarily multiple-choice, with open-ended responses for detailed insights.
Main Results:
- 64.3% of families reported a significant, albeit small, impact from raising a child with feeding difficulties.
- 36.4% of respondents indicated a moderate to significant financial impact.
- Barriers to employment and childcare, alongside non-medical expenses, exacerbated financial and psychological strain.
Conclusions:
- Families raising children with feeding difficulties face considerable financial and psychological burdens.
- Parents often struggle to access adequate support for their own wellbeing.
- Addressing economic barriers is crucial for improving family outcomes and child health.
Abstract:
Economic barriers to accessing support for children with paediatric feeding difficulties can have serious repercussions, including parental stress and emotional fatigue, the child developing a negative relationship with food and health risks such as undernourishment, aspiration pneumonia or choking. We explored the financial and psychological impact experienced by parents and caregivers raising a child with a feeding difficulty in Aotearoa. Respondents were 88 parents or caregivers of a child with a feeding difficulty, living in Aotearoa. Respondents completed an online survey with 34 questions, the majority of which were multi-choice. Open-ended responses provided exemplars and detail. The results indicate that many families (64.3%) experience a significant but small impact associated with raising a child with feeding difficulties in Aotearoa. However, 36.4% of respondents reported a moderate to significant financial impact. Barriers to working caused by feeding challenges and childcare, as well as non-medical expenses, contributed to financial strain and psychological impacts experienced by respondents. Parents struggled to find support for their own wellbeing.
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