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Continuing care describes the variety of health, personal, and social services provided over a prolonged period. The need for continuing care is increasing because people are living longer. Many people do not have families or others to care for them. Continuing care is mainly for patients who are disabled, functionally dependent, or suffering from a terminal disease. It is available within institutional settings or in homes. Examples include nursing centers or facilities, assisted living,...
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Related Experiment Video

Updated: Jun 24, 2025

A Machine Learning Approach to Design an Efficient Selective Screening of Mild Cognitive Impairment
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Palliative Care in Early Dementia.

Karen de Sola-Smith1, Joni Gilissen2, Jenny T van der Steen3

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Journal of Pain and Symptom Management
|June 7, 2024
PubMed
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Palliative care is needed early in dementia, even before diagnosis. Research gaps exist in understanding patient needs and effective interventions for early-stage dementia care.

Keywords:
Mild cognitive impairmentadvance care planningearly dementiapalliative care

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Area of Science:

  • Gerontology
  • Neurology
  • Palliative Care

Background:

  • Palliative care is recommended for all individuals with dementia.
  • However, palliative care needs and effective elements are not well-defined for early dementia stages.

Purpose of the Study:

  • To systematically map current research on palliative care in the early stages of dementia.
  • Identify palliative care needs and effective elements for early dementia.

Main Methods:

  • Scoping review of scientific literature.
  • Searched PubMed, CINAHL, EMBASE, Cochrane, PsycINFO, and Web of Science.
  • Included English studies from the last decade focusing on early dementia palliative care.

Main Results:

  • Few studies specifically addressed early dementia palliative care.
  • Palliative care needs exist from diagnosis, with opportunities at 'tipping points'.
  • Needs include future care advocacy, reassurance, planning, and provider relationships; effective elements involve dementia-specific discussions, support networks, and tailored care.

Conclusions:

  • The literature on early dementia palliative care is sparse.
  • Future research should focus on assessment tools, patient/family needs, and provider/family training.
  • Optimizing palliative care timing and communication is crucial for early-stage dementia.