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Updated: Jun 24, 2025

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Identifying outcomes and outcome measures in neonatal family-centered care trials: a systematic review

Cansel Kocakabak1, Agnes van den Hoogen2, Melissa Rothfus3

  • 1School of Nursing and Midwifery, Faculty of Health, University of Plymouth, Plymouth, UK. cansel.kocakabak@plymouth.ac.uk.

Pediatric Research
|June 7, 2024
PubMed

Insights

This review found inconsistent outcomes and measures in family-centered care (FCC) interventions for neonatal units. Standardizing outcomes is needed to improve evidence and identify best practices in infant and parent care.

Area of Science:

  • Neonatal care research
  • Evidence-based practice
  • Systematic review methodology

Background:

  • Clinical trials for family-centered care (FCC) interventions report varied outcomes for infants and parents.
  • This systematic review focuses on experimental studies in neonatal care units.

Purpose of the Study:

  • To identify and categorize outcomes, outcome measures, and time-points used in FCC intervention studies.
  • To highlight the heterogeneity in outcome reporting within neonatal FCC research.

Main Methods:

  • Systematic literature search across 9 databases (updated Nov 2023).
  • Included experimental studies on FCC interventions in neonatal settings.
  • Used JBI checklist for critical appraisal and narrative synthesis; outcomes categorized by Comet Taxonomy.

Main Results:

  • Analyzed 42 studies, identifying 60 outcomes (42 infant, 18 parent).
  • Outcomes clustered into 12 infant and 5 parent domains, measured by 97 different measures.
  • Reported 25 infant and 27 parent time-points, showing significant variation.

Conclusions:

  • Identified significant heterogeneity and inconsistency in outcomes, measures, and time-points for FCC interventions.
  • Lack of standardized reporting hinders data synthesis and conclusive recommendations.
  • A core outcome set for FCC studies is essential for benchmarking and advancing best practices in neonatal care.
Abstract

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