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Related Experiment Video

Updated: Jun 24, 2025

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting

Published on: June 6, 2020

Creating Culturally Adapted Multilingual Materials for Research.

Alyssa Coffin^1,2, Brynn Elder¹, Marcella Luercio^1,2

¹Division of General Pediatrics, Department of Pediatrics, Boston Children's Hospital, Boston, Massachusetts.

|June 11, 2024

Summary

This study introduces a feasible method for translating research materials into multiple languages simultaneously, promoting language justice and reducing health inequities. The approach ensures equitable participation by adapting materials for diverse linguistic communities.

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Area of Science:

Health Equity
Clinical Research Methodology
Linguistic Adaptation

Background:

Exclusion of non-English speaking patients from research creates inequities and biases results.
Language justice is crucial for addressing power imbalances and promoting equity in healthcare.
Current translation methods may not be efficient or effective for complex research materials.

Purpose of the Study:

To propose and detail a method for simultaneous translation and cultural adaptation of research materials into multiple languages.
To advance language justice in research by ensuring materials are accessible to diverse linguistic groups.
To provide a feasible and rigorous approach for translating participant-facing materials.

Main Methods:

A multistep approach involving professional translation, bilingual expert panel review, and patient/family piloting.
Omission of back-translation and limitation of panelist/participant numbers for feasibility.
Simultaneous translation of brochures, surveys, and intervention materials into 8 non-English languages.

Main Results:

The method successfully translated diverse research materials into 8 languages in approximately 6 months.
The cost was under $2000 per language, excluding study personnel.
Key considerations included tailoring scope, designing source materials thoughtfully, applying guiding principles, and reviewing for linguistic nuances.

Conclusions:

This method offers a balance of feasibility and rigor for simultaneous multilingual translation of research materials.
It effectively promotes language justice and enhances inclusivity in clinical research.
The approach is adaptable for various research settings and material types.