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In a Strained Healthcare System, Patients with Advanced COPD Struggle to Access the Needed Support from the
M Lavesen1, M Paine1, D G Bove2,3
1Department of Respiratory Medicine and Infectious Diseases, Copenhagen University Hospital Bispebjerg and Frederiksberg, Copenhagen, Denmark.
COPD
|June 12, 2024
Summary
Danish patients with advanced Chronic Obstructive Pulmonary Disease (COPD) face challenges accessing support for self-management due to a strained healthcare system. Patients often neglect their needs, risking disease progression and hospital admission.
Area of Science:
- Pulmonary Medicine
- Healthcare Systems Research
- Patient Self-Management
Background:
- Advanced Chronic Obstructive Pulmonary Disease (COPD) requires effective patient self-management.
- Healthcare systems face increasing strain, impacting patient support.
- Understanding patient perspectives is crucial for optimizing COPD care.
Purpose of the Study:
- To explore self-management strategies of Danish patients with advanced COPD.
- To investigate patient daily life and interactions with respiratory outpatient clinics.
- To identify barriers and facilitators in accessing support for COPD self-management.
Main Methods:
- Semi-structured interviews were conducted with 11 Danish patients diagnosed with COPD.
- Thematic analysis, following Braun & Clarke's methodology, was applied to interview data.
- Focus was placed on patient experiences within the healthcare system.
Main Results:
- An overarching theme identified challenges in accessing support within a strained healthcare system.
- Key themes included: symptom-based access, patient interpretation of measurements, and the importance of healthcare professional skills.
- Patients' reluctance to burden the system can lead to neglected symptoms and increased hospitalization risk.
Conclusions:
- The healthcare system's perceived strain influences patients' self-management behaviors.
- Healthcare professionals must recognize how system rhetoric affects patient needs assessment.
- Addressing patients' holistic needs, including mental health, is vital to prevent disease progression and hospital admissions.
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