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Understanding and Defining Young People's Involvement and Under-Representation in Mental Health Research: A Delphi
Rachel Perowne1, Sarah Rowe2, Leslie Morrison Gutman1
1UCL Centre for Behaviour Change, Division of Psychology and Language Sciences, University College London, London, UK.
Summary
This Delphi study defined types of involvement and under-representation in youth mental health research. It provides a framework for researchers to improve the diversity of young people involved in mental health studies.
Area of Science:
- Mental Health Research
- Public Health
- Youth Engagement
Background:
- Youth mental health is a growing public health concern in the UK.
- Many young people with mental health difficulties are not accessing services.
- Diverse youth involvement in research is crucial for designing effective services.
Purpose of the Study:
- To identify and define different types of youth involvement in mental health research.
- To define and describe under-representation in this research context.
- To develop a practical resource for researchers.
Main Methods:
- A three-round Delphi study involving 27 experts (academic researchers, PPI professionals, young 'experts by experience').
- Online questionnaires were used to gather and achieve consensus on views regarding involvement and under-representation.
- Consensus (≥70% agreement) was sought across nine question areas.
Main Results:
- Consensus was reached in eight out of nine areas.
- A matrix defining various types of youth involvement, from advisors to ambassadors, was created.
- An agreed definition of under-representation was established, identifying when and in whom it occurs.
- Recommendations for demographic data collection to enhance reporting on involvement diversity were agreed upon.
Conclusions:
- The study enhances understanding of involvement and under-representation in youth mental health research through expert consensus.
- It offers a practical framework for researchers to guide youth involvement in research.
- The findings emphasize the importance of collecting specific demographic data to ensure and report on diverse youth participation.
Keywords:
coproductiondiversityinvolvementmental health researchpatient and public involvementrepresentationyoung peopleMore Related Videos
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