Patient-driven research priorities for patient-centered measurement

Area of Science:

• Patient-centered measurement (PCM)
• Health services research
• Qualitative research

Background:

• PCM emphasizes holistic patient input via standardized measures.
• Integrating patient-reported outcomes into clinical decisions requires stakeholder perspectives.
• Advancing PCM science necessitates understanding patient-driven research priorities.

Purpose of the Study:

• To identify patient-driven research priorities for advancing the science of patient-centered measurement (PCM).

Main Methods:

• Qualitative inductive analysis of seven focus groups.
• Constant comparative methods applied to data from 73 patients.
• Research conducted in British Columbia, Canada.

Main Results:

• Patients desire PCM to directly influence healthcare decisions.
• Priorities for advancing PCM include enhancing patient-provider relationships.
• Key areas identified: patient voice, inclusivity, psychological safety, service improvement, and system accountability.

Conclusions:

• Identified priorities offer a roadmap for future PCM research.
• Research advancements can lead to better health outcomes and resource utilization.
• Focus on patient priorities can transform healthcare delivery and systems.