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  11. Establishing A Standing Patient Advisory Board In Family Practice Research: A Qualitative Evaluation From Patients' And Researchers' Perspectives.

Establishing a standing patient advisory board in family practice research: A qualitative evaluation from patients' and researchers' perspectives.

Jennifer Engler1, Fabian Engler1, Meike Gerber1

  • 1Institute of General Practice, Faculty of Medicine at Goethe-Universität Frankfurt am Main, Frankfurt, Germany.

Health Expectations : an International Journal of Public Participation in Health Care and Health Policy
|June 17, 2024

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View abstract on PubMed

Summary
This summary is machine-generated.

Establishing a patient advisory board (PAB) in family medicine research is feasible and productive. Patients and researchers found value in the open exchange of perspectives, enhancing research relevance and implementation.

Area of Science:

  • Family Medicine Research
  • Health Services Research
  • Patient and Public Involvement

Background:

  • High-quality research requires active patient and public involvement.
  • Integrating patient and provider perspectives early improves research feasibility and relevance.
  • A standing patient advisory board (PAB) was established within the ForN family practice research network.

Purpose of the Study:

  • To describe the establishment and functioning of a standing PAB in family medicine research.
  • To evaluate the PAB from both patient and researcher perspectives.
  • To understand the impact of PAB involvement on research projects.

Main Methods:

  • Anonymous feedback forms collected post-PAB meetings from patients and researchers.
  • Thematic analysis of feedback focusing on positive and challenging moments.
Keywords:
citizen sciencefamily practicepatient empowermentstakeholder participation

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  • Researchers' reflections on implementing PAB feedback were also analyzed.

    • Main Results:

    • Analysis of 40 patient and 14 researcher feedback forms.
    • Patients valued 'exchange' and open discussions with researchers.
    • Researchers appreciated the open atmosphere and gained patient perspectives, leading to research adjustments.

    Conclusions:

    • Establishing a standing PAB in family practice research is feasible and productive.
    • PABs enhance research relevance and facilitate the implementation of patient insights.
    • The study highlights the mutual benefits of PABs for patients and researchers.